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MS sufferers lobby province for treatment – Metro US

MS sufferers lobby province for treatment

Sindy Layh thought she had her husband back, but she is now slowly watching him slip away.

In June, Sindy and Gordon Layh of Bonnyville travelled to Poland to try an experimental treatment not available in Canada for his multiple sclerosis. Now his symptoms are coming back.

“I had my husband back. Now I spend all my time worrying,” said Sindy.

Gordon said the CCSVI (chronic cerebrospinal venous insufficiency) treatment he received was “almost a miracle” but now needs followup treatment here in Alberta.

“Because I am not dying, the treatment is very passive,” said Gordon.

The couple joined about 50 people on the steps of the Alberta legislature yesterday to demand the government bring this treatment to Canada so MS sufferers don’t have to seek relief abroad.

Alberta’s health minister says patients who need treatment following controversial out-of-country surgery for multiple sclerosis will get help.

“This is one of those problems you have when you have something that is classified by the medical community as experimental in nature,” Gene Zwozdesky told reporters yesterday.

“But the fact is that somebody goes out (for the surgery) and has a complication that develops, then we in the province have no choice but to help them best we can to alleviate their difficulties.”

With files from the canadian press