Scores of people with multiple sclerosis have in the last half-year or so undergone a procedure many hope will cure or at least improve their disease symptoms. And with each passing week, more are travelling abroad to have the untested therapy, which most cannot get in North America.

But instead of results of their treatments showing up in the pages of scientific journals, they are appearing in YouTube videos and website testimonials. It’s as if there were a large, informal experiment underway. But it’s one that isn’t likely to persuade scientific skeptics that the therapy is useful in treating MS.

The liberation treatment, as it is called, is based on an unproven theory that blocked neck and spinal cord veins are to blame for MS and that opening up those blockages gives MS patients back some of the ability to function that the disease has stolen.