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Son who battled rare disease remembered at Walk for Heart – Metro US

Son who battled rare disease remembered at Walk for Heart

Christopher Kennaway was diagnosed with heart disease at age five. Ever since then, he had wanted to become a cardiologist and find a cure for Catecholaminergic Polymorphic Ventricular Tachycardia (CPVT), the rare, life-threatening condition that afflicted him.

At 17, he got a pacemaker and defibrillator, but three years ago, the 22-year-old, who was studying science at uOttawa, died in his sleep.

His parents, Jeff and Diana Kennaway, described Christopher as “a nice kid with a funny sense of humour” who loved sports and his family and friends.

“He was hoping once he became a cardiologist to go into research and try and find a cure for his particular disease,” said Jeff.

The Kennaways were ambassadors for the 10th annual Walk for Heart.

Yesterday’s event raised over $12,000, said Jan Ditchfield, area coordinator of community events for the Heart and Stroke Foundation.

Last year, the foundation put $5.4 million back into the Ottawa area for research, said Ditchfield.